Caregiving Resources

For Caregivers

National Alliance for Caregiving
URL: www.caregiving.org
The National Alliance for Caregiving (NAC) is a leading national resource on family caregiving to improve the quality of life for families and care recipients. The Alliance is a non-profit coalition of more than forty national organizations focusing on family caregiving.
Website:
National Alliance for Caregiving
Eldercare Locator
URL: eldercare.gov/ELDERCARE.NET/Public/Index.aspx
Eldercare Locator is a public service of the U.S. Administration on Aging for older adults and their families, providing links to community services and resources. You may search by topic or region. You may also call them at 800.677.1116
Website:
Eldercare Locator
Call them:
800.677.1116
Family Caregiver Alliance
URL: caregiver.org/caregiver/jsp/
Family Caregiver Alliance (FCA) is a public voice for caregivers and has developed a wide array of services and publications based on caregiver needs with programs offered on the local, state, and national levels.
Website:
Family Caregiver Alliance
Assisted Living Guide
URL: www.assistedliving.org/assisted-living-options-for-people-with-disabilities
A guide that provides comprehensive information on topics like available care options, financial support, and free resources that are available from each state.
How Can We Help Our Nation's Caregivers?
URL: www.selectltc.com/Downloads/articles_studies/How_Can_We_Help_Our_Nations_Caregivers.pdf
The Parade Magazine article “How Can We Help Our Nation's Caregivers?” offers straightforward advice on how to find help and take care of oneself while taking care of a loved one.
Website:
What Caregivers Need to Know

Websites about Dementia-related Diseases

Lewy Body Dementia Assocation
URL: lbda.org
The Lewy Body Dementia Assocation (LBDA) is a non-profit organization dedicated to raising awareness of the second leading cause of dementia after Alzheimer’s Disease. The LBDA supports patients, families, and caregivers dealing with LBD, in addition to promoting scientific advances.
Website:
Lewy Body Dementia Assocation
LBDA’s “Essays on Caregiving”
URL: lbda.org/node/335
LBDA’s “Essays on Caregiving” are personal stories written by caregivers for those with LBD.
LBDA toll-free caregiver support line: 800.539.9767
Website:
LBDA’s “Essays on Caregiving”
Call them:
800.539.9767
Alzheimer’s Association
URL: alz.org
Alzheimer’s Association is the largest private non-profit funder of Alzheimer’s research Founded in 1980, their mission is to eliminate AD through the advancement of research; to provide and enhance care and support for all affected; and to reduce the risk of dementia through the promotion of brain health.
24/7 Alzheimer’s Association Helpline: 800.272.3900
Website:
Alzheimer’s Association
Call them:
800.272.3900
National Parkinson Foundation
URL: parkinson.org
The National Parkinson Foundation (NPF) is focused on meeting the needs in the care and treatment of people with Parkinson’s disease (PD) through research, education, and outreach. People with PD sometimes develop Parkinson’s Disease Dementia. For more information, call 800.4PD.INFO (473.4636) or email .
Website:
National Parkinson Foundation
Call them:
800.4PD.INFO (473.4636)
Email them:
helpline at parkinson dot org
National Stroke Association
URL: www.stroke.org/site/PageNavigator/HOME
The National Stroke Association’s webpage on Vascular Dementia and Stroke
Website:
National Stroke Association

Websites about other diseases:

Mesothelioma Guide
URL: www.mesotheliomaguide.com
Mesothelioma is a rare cancer caused by exposure to asbestos particles and affects the lining of the lungs, heart, and abdomen.

Links to “Essays on Caregiving”

URL: lbda.org

From the Lewy Body Dementia Association website. These essays appear in slightly altered versions as chapters in the manuscript.